We would like to welcome you to the joint homepage for the “International Porphyria Patient Day 2015” and the “International Conference on Porphyrins and Porphyrias 2015”!
The Patient Day will be held on Sunday 13th 2015, the day before the beginning of the conference, and will bring together porphyria patients from all over the world, give them the opportunity to meet among friends, to exchange experiences, get to know each other, and to hear the latest news from the top scientists in the field.
What we are trying to achieve with the patient day is to forge bonds between people and between our patient organisations, because together we can achieve a great many things! Things no one of us could do alone, like raising public awareness and understanding for our conditions, and taking the chance to be actively involved in the very research that creates a better future for all of us.
We are looking forward to seeing all of you here in Germany!
For the organizing team
Thorsten and Danny